Hepatitis C New Zealand

October 31, 2008

Hepatitis C New Zealand

News this Hepatitis C New Zealand blog 31 October 2008

All you budding pharmaceutical magnates wanting to make a dollar or two out of hepatitis C

should be all over this one……

 SUPPLY OF PEGYLATED INTERFERON AND RIBAVIRIN

 

 

15 October 2008

Dear Supplier

REQUEST FOR PROPOSALS – SUPPLY OF PEGYLATED INTERFERON AND RIBAVIRIN

PHARMAC invites proposals for the supply of pegylated interferon and ribavirin in New Zealand

 

The document is actually quite informative

 

http://www.pharmac.govt.nz/2008/10/15/2008-10-15%20-%20Pegylated%20interferon%20RFP%20document.pdf

 

a Price list of what combination therapy costs in New Zealand.

 

 

Price list of what combination therapy

Strength and presentation Price and subsidy

Inj 50 mcg x 4 with ribavirin cap 200 mg x 112 $1080.40

Inj 50 mcg x 4 with ribavirin cap 200 mg x 84 $976.80

Inj 80 mcg x 4 with ribavirin cap 200 mg x 140 $1583.60

Inj 80 mcg x 4 with ribavirin cap 200 mg x 168 $1687.20

Inj 80 mcg x 4 with ribavirin cap 200 mg x 84 $1376.40

Inj 100 mcg x 4 with ribavirin cap 200 mg x 112 $1746.40

Inj 100 mcg x 4 with ribavirin cap 200 mg x 84 $1642.80

Inj 120 mcg x 4 with ribavirin cap 200 mg x 140 $2116.40

Inj 120 mcg x 4 with ribavirin cap 200 mg x 84 $1909.20

Inj 150 mcg x 4 with ribavirin cap 200 mg x 140 $2516.00

Inj 150 mcg x 4 with ribavirin cap 200 mg x 168 $2619.60

Inj 150 mcg x 4 with ribavirin cap 200 mg x 84 $ 2308.80

 

Information includes How much PEGYLATED INTERFERON AND RIBAVIRIN has been supplied in previous years.

 

How much they want to buy next year, Looks like the big increase in access to treatment is to be delayed somewhat.

Interested SUPPLY OF PEGYLATED INTERFERON AND RIBAVIRIN Contact Greg Williams at PHARMAC by telephone (04) 916-7524 or email greg.williams@pharmac.govt.nz.

 

No wonder my local MP Pete Hodgson now refuses to answer questions about his hollow promises to the 50,000 New Zealanders with Hepatitis C. Sure hasn’t increased access in his electorate in 2009…..

 

“Hon Pete Hodgson

Minister of Health  5 December 2006 Media Statement  In addition, $5 million per year
will be invested to improve access to, and uptake of, hepatitis C treatment services.”

 

 

Waiting to be treated for your genotype three with Pegylated Interferon. Well Pharmac has that under consideration since May 2007. I would not hold my breath waiting for that approval.

 

The 6th Australasian Viral Hepatitis Conference is over now and thanks for the comment on the last blog post from Paul

 

“Hi, yes, it is pretty important for those of us who went to the conference to report back. We plan to run some stuff in our magazine, The Hep C Review, but because current edition is just about to go to print, this won’t happen until the next edition (Mar 2009). If I hear of anything beforehand, I will post it on the Australasian forum http://www.hepcaustralasia.org
Regards, Paul, Hep C Council NSW (www.hepatitisc.org.au)

 

My self , I heard the conference was full of professionals and a few peers. and well catered apparently food was a high point of conference who says there are no free lunch’s ?

There is still no content any where online, guess the 400 hundred attendees are not the sharing kind ? Or maybe they just haven’t heard about the new fangled inter net thing.

Some good news, The Hepatitis C Resource Centre Auckland , Te Ika a Maui  www.hepc.org.nz  site has been updated and now has forums worth a check out.

Other news here in New Zealand.

 

The labour minister of health Hon David Cunliffe scuttled off to his election.

Hon David Cunliffe has decided the 50,000 New Zealanders with hep C don’t need to know any more facts and figures as he is now ignoring official information act request’s. Meanwhile the ombudsmen is delaying her decision, on his refusal to release public information on the epidemic and the govts response ……more ……………. after the election….. ????

Hon David Cunliffe obviously hasn’t learn t any thing from the Prime minister, Helen “bad blood” Clark

Her inaction when she was minister of health failing to protect the blood supply

Helen Clark, bad blood update Monday, 07 April 2008 NZPA “So far, 486 victims have applied for one-off payments and the Government has paid out $25.5m. Most of the affected haemophiliacs — about 155 — have received packages from $43,200 to $69,600, enabling many to start a chemotherapy-type drug course for hepatitis C.”

Testing for hepatitis C became feasible in February 1990, however, New Zealand did not introduce nationwide screening of blood donations for hepatitis C until 27 July 1992.”

New Zealand was the second to last country in the developed world to introduce blood screening measures for hepatitis C. As a result, countless people with haemophilia were infected and re-infected with the potentially deadly hepatitis C virus by the treatment products they depend on to enable their bodies to stop bleeding . The Haemophilia Foundation of New Zealand Inc. (HFNZ)     NZF web site

 

Thanks for that Hon Helen Clark and Hon Simon Upton.

Hon David Cunliffe is following in their foot steps and as minister of health has been creating an even bigger mess, by failing to deal with the epidemic and treating New Zealand community as a giant test tube in which to grow hepatitis C, his and the New Zealand Ministry of Health demonstrate ongoing incompetence in dealing with a preventable and treatable disease.

They need to wake up and deal with it now. Identify those at risk, test them, treat them and save the country millions if not billions of dollars of future health costs.

 “will cost the country dearly in coming years. He says there will be a multiplier effect in terms of increased health costs through extra GP visits, diagnostic tests, hospital outpatient follow-up, and inpatient admissions for liver cirrhosis and liver transplants.”
Ian Sheerin National Addiction Centre Christchurch School of Medicine and Health Sciences University of Otago

How many more will have to suffer ?…..

 

Best of Health

 

www.hcv.org.nz

 

 

 

 

 

 

October 21, 2008

Random thoughts on Hepatitis C In New Zealand

A few random thoughts for this week,

Pills Ribavirin and potions Roferon A, Interferon Alpha 2 a

Ive been measuring my life out in Ribavirin Tablets and Roferon A (interferon) injections.

It’s easy enough to function but doing things that require mental effort are delayed. I feel a bit confused by the drugs but no major side effect yet, fingers crossed.

 

A few weeks ago , I got an email from Sanjiv Syal whose story is quite inspirational.

 

Hi,

Came across your website on the web

I am an HCV patient and my story is attached; I would be happy if you take the time out to read it and reach out to the HCV community and share my experience with them.

I hope it will motivate patients to be optimistic, keep the faith and carry on with their lives, while dealing with the disease!

Thank you & I look forward to hearing from you…

Warm Regards

Sanjiv Syal

” A wise old man once said “Disease is what you
have and illness is how you react to it.” Most
patients share their experiences after they have
had successful outcomes; I would like to share
mine as I traverse this journey with the hope
that I might inspire a few of us (out of the 180
million infected worldwide with HCV) who are
finding it tough to cope with situations or are
losing the will to fight. I hope my story touches
a chord or two and provides emotional support
and encouragement. ”

you can read Sanjiv Syal ‘s  story here

http://www.hcvadvocate.org/community/stories/Sanjiv.pdf

The other news happening is the 6th Australasian Viral Hepatitis Conference.

The 2008 conference is in Brisbane at the Convention & Exhibition Centre, South bank on Monday 20 October to Wednesday 22 October ,

The program is here. http://www.hepatitis.org.au/program/

It’s got some interesting stuff happening but you and I the people actually effected by hepatitis C are un likely to hear anything, a recent search of the Internet revealed little content from the conference.

There is a media release page here http://www.hepatitis.org.au/media/

Best of health

www.hcv.org.nz

October 8, 2008

Chrsitchurch Hepatitis C News & Treatment

Treatment

The standard treatment for Hepatitis C is Pegylated Interferon plus Ribavirin.

Unfortunately here in New Zealand if you have genotype three you are only eligible for Interferon and Ribavirin which is less effective than the Pegylated Interferon.

Monday I started treatment for the first time for genotype three.

I definitely feel the effects of the medication I just think I felt the effects of my hepatitis C, more so overall I am am willing to suffer for six months to attempt to rid my self of this virus.

I inject myself intramuscular with Interferon three times a week and take Ribavirin tablets twice a day.

This video explains how to administer Interferon using a roferon-pen  something i now do every two days

 

Lately I’ve been watching a you tube video blog / treatment diary of a DJ musickey who is undergoing treatment for hepatitis C. I like to learn from others experiences and watch the progress of treatment and to see what to expect.

Watching DJ musickey progress from day one of treatment to month two has been a informative and educational experience.

 

The New Zealand news this month is from Christchurch,

Bill Jangs editorial from the Christchurch Hepatitis C Resource Centre News Letter Connexions for September 08, It gives the details on the new Christchurch Community Hepatitis C Clinic.

http://www.hcv.org.nz/chchclinc.html

No actual treatment yet but lots of support and testing education and counseling with free Doctor one day per week. 0800 224372 or Christchurch 3663608

If you want to receive a copy of the Connexions news letter email hcv@xtra.co.nz

The other local news from Christchurch is the Canterbury District Health Board reply to our questions about Hepatitis C treatment in Christchurch.

Mr Murray Dickson Christchurch DHB answers questions about Hepatitis C in Christchurch

http://www.hcv.org.nz/CHCHOIA08.html

In comparison to Dunedin figures it seems at first glance to be a big improvement on Otago’s appalling waiting lists

Mr Brian Rousseau Chief executive Officer Otago District Health Board answers questions about Hepatitis C in Otago

http://www.hcv.org.nz/otagoaudit08.html

I interesting article about some of the future treatment options is also new on the site and very informative.

New Directions in Hepatitis C Therapy: A Look at the Evolving Therapeutic Arsenal

http://www.hcv.org.nz/hepcnewtreat.html

Voices of Liver Disease Naomi Judd

This is a video from the ALF (American Liver Foundation)with Naomi Judd speaking about her diagnosis with Hepatitis C.

 

 

Best of Health

www.hcv.org.nz

 

 

 

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