Hepatitis C New Zealand

December 26, 2008

Hepatitis C New Zealand Last Blog of the year 2008 ?

New Zealand Hepatitis C


Last Blog of the year 2008

Wish everyone reading this the best for 2009

I’m half way through my hepatitis C treatment now it’s been challenging, my empathy to anyone with hepatitis C.

My advice, prevention,  get tested,   get treated

Pete Doherty advice on what not to share

Patients who do not initially respond to standard drug therapy for treatment of hepatitis C are unlikely to respond to long-term maintenance therapy

A recent study revealed,

Patients who do not initially respond to standard drug therapy for treatment of hepatitis C are unlikely to respond to long-term maintenance therapy as well, according to a new study.

Yet many patients who do not at first respond to drugs are placed on maintenance therapy, which is expensive and can be both physically and psychologically gruelling , in hopes that long-term treatment will keep the disease in check. The practice is ineffective and possibly harmful, the study’s authors said.

Read more here

Who will be likely to be successful in drug treatment for Hepatitis C ?

“He suggests scientists could design a test to see if the viruses infecting these patients have these genetic characteristics to determine whether or not standard hepatitis C therapy is likely to work.

“The side effects of the medicines to treat hepatitis C are terrible,” Tavis saids. “Why beat on a patient for a year if the treatment isn’t going to work anyway?

“On the other hand, if we know the medicine is likely to work, we can coax patients to stick with the therapy. It would help doctors to positively support their patients through trying times.”

In addition, hepatitis C therapy is very expensive, with a course of treatment costing up to $30,000. A custom test that determines whether a patient would benefit from the treatment could be developed for about $100 per sample and given to patients before the standard treatment is prescribed, Tavis said.

“If the test shows the treatment won’t work, physicians could counsel against interferon-based therapy, avoiding tens of thousands of dollars in expenses and painful side effects for the patient,” Tavis said. “It’s wasteful to spend millions of dollars on medicine that won’t work.”

Established in 1836, Saint Louis University School of Medicine has the distinction of awarding the first M.D. degree west of the Mississippi River. Saint Louis University School of Medicine is a pioneer in geriatric medicine, organ transplantation, chronic disease prevention, cardiovascular disease, neurosciences and vaccine research, among others. The School of Medicine trains physicians and biomedical scientists, conducts medical research, and provides health services on a local, national and international level.

Read more

“U.S. healthcare workers are now significantly safer from needle stick injuries, according to a new study from the University of Virginia International Healthcare Worker Safety Center.

The study also found that the largest reductions in injury rates were for two devices with the highest risk of transmitting infections. These two high-risk devices, phlebotomy needles and I.V. catheter needles, showed reductions of 59 percent and 53 percent respectively.

The Centers for Disease Control and Prevention estimates that U.S. healthcare workers sustain an estimated 384,000 needle stick injuries each year. According to figures from the World Health Organization, nearly three million healthcare workers worldwide are exposed to blood borne diseases in the course of their work every year, resulting in as many as 15,000 hepatitis C infections, 70,000 hepatitis B infections and 500 HIV infections annually. More than 90 percent of these occupational infections occur in developing countries – precisely where health workers are scarcest.”

Read more

Hopefully 2009 will be the year of action on Hepatitis C Education Support and Treatment here in New Zealand

It’s also our first birthday for the web site in 2009, we intend to celebrate with the unveiling of our New Website with a new design and content planned.

On a personal level i want to thank all those who have supported me in my journey through treatment I’ve got my fingers crossed and am feeling good, looking forward to 2009.

Best of Health

www.hcv.org.nz

December 5, 2008

A dose of the hepatitis C blog

A dose of the hepatitis C blog ,

had my dose of Roferon this evening and can’t seem to relax.

I gave up drinking coffee before I started treatment and to be honest haven’t missed it saved a lot of money, then along comes this study

“ As reported at the 59th Annual Meeting of the American Association for the Study of Liver Diseases in November 2008, an increase in coffee consumption may slow the progression of liver damage caused by Hepatitis C.

No plans to start drinking coffee again for me but a reason perhaps to not stop drinking coffee if you have hepatitis C

With 90 percent accuracy, three clusters of proteins in the blood samples were found to predict who would respond to therapy and who would not.

The treatment pathway is along and challenging journey through a varied mind scape for some it is not successful and others it works and they achieve a svr Sustained Virological Response.

Proteomics is the large-scale study of proteins, particularly their structures and functions.[1][2] Proteins are vital parts of living organisms, as they are the main components of the physiological metabolic pathways of cells. The term “proteomics” was coined to make an analogy with genomics, the study of the genes. The word “proteome” is a blend of “protein” and “genome“.

And you may ask what does Proteomics have to do with Hepatitis C ?

Researchers from the Duke University Clinical Research Institute found a similarity among those with Hepatitis C who are among the 50 percent who do not respond to interferon-ribavirin combination therapy. Presented October 31, 2008 at the annual meeting of the American Association for the Study of Liver Disease, the Duke researchers used proteomics to identify specific proteins that foretold the likelihood of Hepatitis C treatment success.

With 90 percent accuracy, three clusters of proteins in the blood samples were found to predict who would respond to therapy and who would not.

Read more here

Disclosure and Hepatitis C

Some one emailed www.hcv.org.nz  a interesting question that all people with hepatitis C face disclosure

” Hello,

What are the legal requirements, if any,  you must do to inform a  partner or employer
that you have hepatitis C.

It thought I would ask my too favorite Hepatitis C professionals their expert opinions

and here is what they said, which deserves a wider audience

***note these are not legal opinions for that you need to ask a lawyer***

The Hepatitis C Educator reply

As far as I’m aware, as HCV is not a notifiable infection, there are no legal
requirements to disclose anyone’s HCV status to a future or current employer. In other
words you can’t loose your job just ’cause you have Hep C. If an employer fires staff for
being HCV+, then they are in big trouble. It’s called unfair dismissal. Also, an employer
cannot force an employee to reveal their HCV status.
Now, as far as the partner situation goes, if the relationship is a healthy and loving
one then personally I would tell my partner. Once again, there’s no legal requirement to
do so. But a moral one, I would like to think so. If you like, pass my mobile number
and/or the HCRCO email and phone number on, and inform that I’m free to talk about any of
this kind of stuff.

0800 224372 (0800 22 HEPC)    To contact your nearest hepatitis  C resource center (New Zealand only)

The hep c nurse

Hi
From my understanding there are no legal requirements to inform.

To be in a relationship and wishing to continue in a relationship I
would have thought you would want to inform your partner…….it
doesn’t lead to a good relationship to deny someone that information.
It can become very nasty when they suddenly find out (this is from
experience)
The person infected with Hepatitis C needs to have a good understanding
about the spread of the disease; to risk spread and infecting their
dearly beloved.  ie no sex toys, use condoms during menstruation or when
there is any genital lesions, keep cuts and wounds covered, keeping
razors for personal use only etc etc
Hope this helps

…………………………

On a personal level I don’t tell everyone I meet, I am aware stigma and discrimination exist and keep my Hepatitis C status on the down low.

I tell my partner and family and close friends I tell it’s selective, everyone is different. I practice tactical disclosure.

Magdalena has some great information in her thesis on how different peers deal with the issue.

And we wrote a blog post about disclosure here.

Ive been watching a few videos lately

lifestyle issues and hepatitis C prt 1

Video by internationally renowned hepatologist/liver disease specialist Melissa Palmer, M.D. on lifestyle issues and hepatitis C.

I’m much more relaxed now I’ve let the inner blog out to play

Best of health

www.hcv.org.nz

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